I was recently reading a post from a Facebook friend about how she has felt "let down" by her friends. That she had been sick and in the hospital for all most two weeks and during that time only one friend called to check on her. That was it. When I read her post I was sad but I understood her feelings.
Here I am, a well educated woman, with three disabled children and I am about to find myself homeless. I am fortunate in that my homeless situation should not last forever because I have been offered a job but that does not make the experience any less frightening or anxious. Today I have been feeling so anxious that I feel nauseous.
I am doing quarterly updates on the kids. Could you please tell me how each kid is doing in terms of health, school, and additional services (speech, physical therapy, and Occupational therapy).
Also in order to receive respite for the next quarter, I need to know the name of the provider that you have been working with and whether or not respite has been helpful.
Thanks so much for your time
I have not signed the children up for school services for this year.
The kids had been going to private therapy. Margaret had been going to occupational therapy and Joseph has been in physical therapy. A month ago Joseph started to walk. His walking is very unsteady and wide legged but he is making it.
My husband left us in July. The children and I have been trying to make it but we are going to be homeless at the end of the month. I am not sure what we are going to do so therapy has stopped for now.
Respite has pretty much been a no go. I cannot find someone to come to my house to watch the children. The lady I had been using has found a job so she can only watch the children on Saturdays. That is not when I need someone. The other numbers I have called and no one seems to answer, want to watch so many children, or in town any longer.
That should catch you up.
I have not completely decided yet but we may move to Arizona at the end of the month.
PS. To add insult to injury today I just realized that the little outfit the nurses sent home to me that Martha wore is NOT right. She did not wear those clothes. I realized it today when I came across the box with the outfit in it. When I found the picture the NICU nurses took that day of Martha I knew as soon as I saw the romper again that was NOT what she wore. I never had her little clothes. :' (