My name is Michelle and I am the mom of surviving quadruplets. I had the quadruplets by pPROM at 26 weeks 6 days. Margaret (baby A) was born first at 1 lb 9 oz, James (baby B) 2 lb 4 oz, Martha (baby C) 2 lb 2oz, Joseph (baby D) 1 lb 8 oz. Sadly, our daughter Martha passed away in my arms a mere 14 hours after she was born. The other babies survived but were affected by their premature birth.
Margaret - She has been diagnosed as Autistic, Sensory Processing Disorder, Perventricular Leukomalacia (PVL) with Diffuse White Matter Brain Injury (Showing Pre- and Post-Birth Hypoxia), Hypotonia, and Mild Cerebral Palsy
James - He has been diagnosed as High-functioning Autism (Asperger), Hypotonia, and ADHD.
Joseph - He has moderate developmental and intellectual delays but none of the specialists can really explain why beyond citing his premature birth and very low birth weight. He has multiple diagnoses since there is no ONE diagnosis that seems to cover everything. He has been diagnosed as Autism, Developmentally delayed with Hypotonia, Cerebral Palsy (though there is no evident brain damage he presents like he has Ataxic CP), Tracheomalacia, Failure To Thrive, Sensory Processing Disorder, Ataxia (motor coordination and planning issues), Dysphagia (feeding issues), Blindness (Right Eye), Intellectual Disability, and possible Mitochondrial disease. Joseph just had whole exome sequencing and there was little in the way of answers. We will continue to search for a diagnosis.
The birth and medical history of the children is very complicated. In this blog I am logging our ups and downs of therapy, doctor appointments, homeschooling and our nutty life in general!