About Us

My name is Michelle and I am the mom of surviving quadruplets. I had the quadruplets by pPROM at 26 weeks 6 days. Margaret (baby A) was born first at 1 lb 9 oz, James (baby B) 2 lb 4 oz, Martha (baby C) 2 lb 2oz, Joseph (baby D) 1 lb 8 oz.  Sadly, our daughter Martha passed away in my arms a mere 14 hours after she was born.  The other babies survived but were affected by their premature birth.

Margaret - She has been diagnosed as Autistic, Sensory Processing Disorder, Perventricular Leukomalacia (PVL) with Diffuse White Matter Brain Injury (Showing Pre- and Post-Birth Hypoxia), Hypotonia, and Mild Cerebral Palsy

James - He has been diagnosed as High-functioning Autistic, Hypotonia, ADHD and possible Auditory Processing Disorder.

Joseph - He has severe developmental and intellectual delays but none of the specialists can really explain why beyond citing his premature birth and very low birth weight.  Keep in mind he was as small as Margaret when we was born, born as prematurely and he has no signs of brain damage or genetic defects unlike Margaret; yet, Margaret functions at a MUCH higher level than Joseph. He has multiple diagnoses since there is no ONE diagnosis that seems to cover everything.  He has been diagnosed as Developmentally delayed with Hypotonia, Cerebral Palsy (though there is no evident brain damage he presents like he has Ataxic CP), Tracheomalacia, Growth Hormone Deficiency, Autoimmune Thyroiditis, Failure To Thrive, Sensory Processing Disorder, Ataxia (motor coordination and planning issues), Dysphagia (feeding issues), Blindness (Right Eye), Intellectual Disability, Incontinence and possible Mitochondrial disease.  Joseph just had whole exome sequencing and there was little in the way of answers.  We will continue to search for a diagnosis.

The birth and medical history of the children is very complicated. In this blog I am logging our ups and downs of therapy, doctor appointments, and our nutty life in general!

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