Thursday, August 28, 2014

Autism: In the Major Media News and Not!

Boy is autism a MAJOR buzz word in the media this week! Well, it is sort of a buzz word in the media I should say. First, let's start with the good news! California has now been forced to cover therapy services for autistic children on the state's low income medicaid program. The Center for Medcaid and Medicare Services has ordered the state insurance programs to cover ABA therapy. Help should be on the way. This coverage should apply to anyone 21 years of age and younger. For more information on the story click HERE.

The next story has been suppressed, denied, and covered up this week.   I'm not sure I can write a post to cover everything that has happened.  Honestly, I don't have the time!  I will point to some good sources. Basically the story is that a scientist at the CDC, Dr.William Thompson, had conversations with Dr. Brain Hooker.  Hooker regularly submits FOIA requests to the CDC for information related to vaccine safety and autism.  So Hooker somehow got to speak to Thompson over the phone.  Hooker secretly recorded the phone calls.  In the call Thompson admits to covering up data that African American babies were 236% more likely to develop autism if they received the MMR vaccination before 36 months. The autism community has been discussing this information for at least a week.  They have been tweeting and haring the story all over Facebook.  Interestingly enough, not one work from the mainstream media news outlets.  Someone then writes an excellent article with reference and posts it to CNN's iReport.  What happens?  Within a day of the article being posted it was taken down as fraud.  That is the suppression.

Then another report was submitted and it was removed even faster.  That article was later re-posted with CNN's caveat that the news media was waiting for a statement from the CDC.  Really?  Does CNN really think the CDC would admit to possible fraud???  So this is the denial.

Thompson would not come out publicly himself.  He was outed by Hooker. In the meantime I think Thompson panicked.  Who wouldn't! He was risking life, home, job, and family so he went to find himself a layer.  The lawyer released a public statement for Thompson.  You an find that information HERE and HERE. In the statement he both confirms the information was left out of the study but then denies by saying he thinks everyone should be vaccinated.   Notice that the lawyer specializes in whistleblower retaliation

Now that the story is getting more press the peer reviewed, medical journal Translational Neurodegeneration, the people that published Hooker's study, has pulled the paper.  You can find a copy of it HERE. This is the coverup.

Gianelloni's blog has a good general post about the story.  You can read it HERE.

Now the diversion is coming.  The magic show to make the story disappear.  It looks like Time is the first major news outlet that is covering the story and they are working at discrediting it. You can read the story HERE. As I read the story I was yelling and muttering at my computer screen because of the distortion of the truth.

Here is her story and I am going to interject my comments I was thinking to myself when I read it...

Whistleblower Claims CDC Covered Up Data Showing Vaccine-Autism Link

The claim, however, may just be more unsubstantiated fuel from the anti-vaccination movement

If you haven’t noticed, there’s a war going on between those who believe in the health benefits of vaccines – that they can prevent deadly infectious diseases such as measles and polio – and those that believe that the immunizations do more harm than good. Now one of the authors of a 2004 government study that found similar vaccination rates among children with and without autism says the study omitted some important data.

The vaccine war is being fought on social media, in social circles and increasingly in doctor’s offices, as physicians are faced with doubts and questions from parents who find themselves being recruited onto the side of skepticism (The reason parents are being recruited is because they are smart enough to ask questions and realize that the CDC is not giving them the information.  Just as the CDC is not giving information to Congress as they have requested). Skepticism is healthy, and the sign of curious minds, but not when it flies in the face of evidence (Even in peer reviewed medical journal articles there are studies that raise concerns.  Don't worry yourself about it though because the press has told you so). Especially gold standard, rigorous scientific evidence that has been accumulating for decades and shows that vaccines are not linked with an increased risk of the developmental disorder.  (This story is listed below with my comments.)

William Thompson, a senior scientist at the Centers for Disease Control (CDC) and one of the authors of a 2004 study published in the journal Pediatrics, spoke with Brain Hooker, who serves on the board of Focus Autism (which was founded to “put an end to the needless harm of children by vaccination and other environmental factors”), about the data that was not included in the final report. The study looked at both healthy children and those with autism, to see if there were any differences in their rates of being vaccinated against measles, mumps and rubella (MMR), and found none. That suggested that childhood immunizations likely were not contributing to an increased risk of autism. Hooker and Thompson, however, discussed a subset of the 624 children with autism and 1824 without the condition who were studied and Thompson admitted that among African-American boys, the incidence of autism was higher among those who were vaccinated than among those who weren’t. But that information was not part of the paper. Thompson claims he was not aware that the discussion was being recorded (if he was do you think he would have ever said anything?), and his statements appeared in a video released on YouTube on August 22 entitled “CDC Whistleblower Revealed.”

Did the CDC cover up the data, as Hooker claims? A couple of things to keep in mind, both about the people behind the video and about how epidemiological studies like the one published in Pediatrics work (and explained in more detail in this article from Science-Based Medicine)(The Science-Based Medicine group are VERY pro-vaccine. I would not call them an unbiased source either). For starters, the video was narrated by Andrew Wakefield, the British researcher responsible for seeding the questions about vaccines and autism in the first place. In 2010, the General Medical Council in the UK revoked his license to practice medicine and a year later, the journal that published his paper concluded that his findings were fraudulent. (To me it all most seems that the author went out of her way to to bias the audience. Wakefield is not as bad as people make him out to be. Just click HERE to see his side of the story. Wakefield also had a point.  There is a high chance that the gut microbiome is involved in at least some types of autism.  More and more information is being published in medical journals discussing the gut microbiome. Just head over to Google Scholar and do a search for "gut microbiome autism" yourself.)
Next, any time scientists take the original population of participants in a study, however large, and drill down to analyze trends in a subgroup – in this case the African-American boys – the power of the associations they find dwindles. That’s because the numbers get smaller, and in order to be statistically relevant – something known as statistical significance to statisticians – certain threshold numbers and confidence intervals for the connection have to be reached. In the 2004 study, the scientists looked at a smaller set of 355 children with autism and 1020 without for whom they had Georgia state birth certificates, which included additional information that might be relevant for any associations, such as birth weight, gestational age, and mother’s age, race and education. “This information was not available for the children without birth certificates; hence the CDC study did not present data by race on black, white or other race children form the whole study sample. It presented the results on black and white/other race children from the group with birth certificates,” the CDC notes in a statement responding to the video. Thompson claims that the findings were statistically significant, but results from smaller numbers of subjects still don’t hold as much weight as correlations found in the larger group. (I disagree with this assessment and apparently so does Thompson who admitted the data left out was statistically relevant.)

In addition, it’s important to note that the study simply correlated age at vaccination and reports of autism, which says nothing about the direction of the connection. For example, the authors of the 2004 study note that “Case children, especially those 3 to 5 years of age, were more likely than control children to have been vaccinated before 36 months of age.” The association between vaccination and symptoms, however, was more likely due to the fact that the children had to be immunized in order to register in preschool (You can't really get vaccinated much before 36 months for the MMR because doctors don't want to do it for state compliance.  I know.  I lived in Alabama.  My oldest daughter (now 20) was vaccinated two months before she was suppose to and I had to get her the vaccine again before she went to school. Most doctors are care NOT to give the vaccines early!  Also, why are case children going to preschool at a greater rate then control children.  That does not make sense to me.), and doesn’t necessarily indicate that the shots contributed to the autism.

In a statement issued through his attorneys (yes, his attorney specializes in whistleblower retaliation!), Thompson says “Reasonable scientists can and do differ in their interpretation of information.” He calls for transparency in the data collecting and reporting process, but says that the way that the 2004 study was presented does not negate the importance of vaccination. “I want to be absolutely clear that I believe vaccines have saved and continue to save countless lives. I would never suggest that any parent avoid vaccinating children of any race. Vaccines prevent serious diseases, and the risks associated with their administration are vastly outweighed by their individual and societal benefits.” (I'm sure Thompson wouldn't have any incentive to say that when he may want to keep his job with the CDC and not be labeled a quack.  I'm sorry Thompson it might be too late for that.  You have spoken and many have listened.  Now if the main stream media will only listen too!)

The latest in-depth review of immunizations shows that they aren’t linked to higher risk of autism or cancer

It’s been three years since the Institute of Medicine (IOM) came out with its comprehensive look at vaccine safety. That’s enough time to generate dozens more studies investigating side effects and risk of conditions such as autism and cancer that keep some parents from vaccinating their children against potentially lethal diseases like mumps, measles and pertussis(First lets get this straight.  The link to the article being sited says "Vaccine Safety: New Report Finds Few Adverse Events Linked to Immunizations."  I added the emphasis. In my blog I explain why being one of the "few" (how many is a few anyways?) is a horrible thing.  Also the IOM is a bunch of doctors that have been brainwashed into thinking vaccines are good. Look at the O'Leary et al. I posted on my page under the measles section.  The abstract left ALL the information out of the results section of the study.  There was a reason for that. Most doctors recommend a risky vaccine because it was recommended by major medical associations like the AAP. Rather shameful in my opinion!

Since 2011, when the IOM issued its report, 67 new studies that included proper follow up periods and control groups have emerged. So the Agency for Healthcare Research and Quality requested an updated review of the data on vaccine safety, this time including data on previously unstudied immunizations against pneumococcus, rotavirus, Hib and inactivated polio virus vaccines in addition to the well-studied ones.

Overall, the researchers, led by Margaret Maglione at the RAND Corporation, (I looked the RAND Corp up.  I noticed they are a non-profit. Someone donates money to pay the bills.  Where is that money coming from?  I did not see anywhere the sponsors/contributors/donators of the company.) report in the journal Pediatrics that most of the childhood immunizations are safe, with only a few (again, how many is few and if YOUR child is one of the"few: I don't think you will feel it is that rare of an event!) associated with rare adverse effects. The group found that the MMR vaccine, which some parents believe raise the risk of autism, does not increase the risk of the developmental disorder. They did find moderate evidence that rotavirus vaccination can cause twisting of the bowels in a small number of children, but the condition can be treated (The first version of this vaccine was pulled from the market because of all the damage it did.  As for treating the twisted bowel; yes, it's done through surgery. Do you want that for YOUR child?  This does not even cover that Paul Offit is the inventor of that vaccine and made MILLIONS off the sell of the patent and now he works for the CDC recommending the vaccine schedule.).
“We need to keep doing this,” says Dr. Carol Baker, executive director of the center for vaccine awareness and research at Texas Children’s Hospital, of the study updates. “We can’t just sit still and rest on prior information.”

Increasingly, she says, pediatricians are spending more time discussing vaccines and vaccine safety with confused or hesitant parents. (That's because people are getting smarter and refuse to just vaccinate their children. Studies are not always transparent, the CDC is not transparent at all and refuses to hand over information to Congress after being requested. Why should I worry...NOT!) That’s a different scenario from the days of the polio epidemic, when parents were lining their children up to get them vaccinated against the paralyzing disease. “The major reason the safety of vaccines has become more of an issue recently is that many of the diseases they prevent have pretty much disappeared,” says Baker, who also served as chair of the Centers for Disease Control’s Advisory Committee on Immunization Practices, which makes recommendations about which vaccines children should get, and when. (I am going to state here that we have prevented disease two ways.  One is vaccinations.  They do work some. They can decrease the number of cases of a disease.  One the other hand the vaccines are dangerous for some people including those who are genetically predispositioned with autoimmune problems.  In that case it may be better for them to catch the disease.  Also most of the infectious disease cases were winding down in number anyways before vaccines were introduced. This is because of an increase in nutrition, sanitation and better medical practices.)  “So this is a very needed report.”

It’s especially helpful as more parents are either skeptical about vaccines, and need reassurance that getting their children is the safe, and responsible thing to do, or are adamantly convinced that vaccines do more harm than good. (Again, I will point out that I am not a true Anti-Vaxxer.  I think vaccinations are fine if your child is healthy.  On the other hand I FIRMLY believe we are vaccinating our children incorrectly.  We should not be administering vaccines until children are about two and have had a chance to fully develop their immune system.  The United States requires the most vaccines before the age of six than any other country. Amazing huh? Also there is not mention of aluminum adjuvants used in vaccines, that the medical professionals have no idea how the aluminum adjuvants excite the immune system, and the dose of aluminum given to babies during their multiple injections surpasses the toxic threshold. You can read more on aluminum adjuvants on my page.) Many pediatricians have alerted their patients that they won’t see children whose parents won’t get them vaccinated since they could pose a risk of passing on disease to their other patients, including infants under six months old who can’t get vaccinated because their immune systems are still too undeveloped to respond properly to the shots, and children whose immune systems are compromised because of cancer or other conditions. The American Academy of Pediatrics doesn’t advise that its members refuse patients, but some pediatricians believe it’s the only way to protect the children they see. (Lucky for those of us that vaccinate on an alternative schedule or not at all we can still find doctors to see. Plus many of us are blessed to have healthy children so rarely need to see a doctor in the first place.) “Pediatricians have to have a conversation about risks and benefits of vaccines,” says Baker. “So we need to keep looking at the studies and the data. Vaccines are good, and disease is bad, and the risk-benefit ratio is favorable for all vaccines. This new study gives reassurance that that’s true. 

Monday, August 25, 2014

A Tale of Hypothyrodism and Iron Deficient Anemia

I know no one really reads my blog for posts about me.  They read it for updates about my children.  Sadly, dear reader, you are left relying on me for that information and I have not been up to writing a blog post in a long time!  I had several issues going for the last several months but I had no idea what was wrong.  The thing that really got me motivated to see a doctor was my extreme fatigue and my drastic hair loss.  If you had been reading my blog for awhile you know I have been complaining about my hair falling out since John and I separated.  I thought the issue was related to stress but I kept seeing hair fall out.  Again, I was not too concerned because I thought it was still stress related but this time from work.

By the end of June I was so fatigued, if you left me to sleep, I could sleep for 16 hours a day!  If you knew me you would know this is a HUGE problem.  First, I don't have time to sleep like that!  Second, I used to be able to wake, on my own, about five minutes before my alarm would go off.  I know, it sounds strange but I don't like being startled awake so I would wake on my own.  With the fatigue I was sleeping through my alarm AND not making it to work on time!

At the same time I was noticing that my hair had thinned to the point you can see my scalp, my nails were brittle and weak plus I was having may stomach issues (gastric upset and diarrhea). I kept seeing my general practitioner (GP) doctor and getting no where.  I had been getting blood all along while seeing a a few GPs.  On my blood work they did find my thyroid was WAY high for me.  Typically my thyroid is about 1.5 to 2.  When it is that low I feel better and have more energy to deal with things.  The test showed it was 6.5. This was quite high and helped to explain my fatigue and brain fog.  The bad news was my hair was still falling out and I was not feeling more energized after taking two months of a higher dose of thyroid.  So my GP suggested I see a specialist and sent me to a hematologist.

I had told her in the past I had issues with iron deficient anemia.  This has been a problem for me since the birth of the Quads.  I think it has to do with the hernia patch.  The doctor had stitched the hernia patch (which looks like a screen mesh) to my abdominal wall.  I think when I do ANYTHING that requires the use of the abdominal muscles that the patch pulls at the incisions site (on the abdominal muscles) and causes bleeding.  I think this bleeding is causing my autoimmune system to go nuts plus is increasing the internal inflammation in my body (as seen in my increase Protein C numbers).  My lab work at the time showed my hemoglobin and hematocrit were within "normal" range.  My numbers were at the lowest number of the acceptable range or one number above.  Since my GP just scans lab work versus reading and interrupting the results herself she did not think I had an iron issue but still wanted me to see a hematologist because I had mentioned I take a multivitamin with iron AND an iron supplement yet my levels were pretty low.

At the Hematologist I explained about the fatigue, brain fog, and general feeling of being unmotivated to do anything.  My issue with my nails, hair, tongue (would get super sore and super sensitive to salt and hot sauce) and the gastro problems.  Then I told him about my theory involving the hernia repair. He listed patiently.  Then he ordered a bunch of blood work.  The hematologist did an expanded blood work planel to include the percentage (%) of hemoglobin in the blood. When that blood work came back I finally had proof I was not only iron deficient but I was pretty severly iron deficient!  The percentage of hemoglobin in the blood values that are consided "normal" are 8% to 50%.  Huge range, right!?!  My value was 4%.  This is EXTREMELY LOW for a woman!  So I was ordered to get IV iron transfusions.  When I asked why the Hematologist said I was not absorbing iron in my digestive track for some reason. I perviously had an upper and lower GI testing done and the GI doctor could find nothing wrong.  I was even tested for celiac disease, irritable bowel disease and milk allergy.  I did not have ANY of those!  The hematologist was not sure why I was not absorbing iron from my diet or the supplements I was taking but he knew the IV route would at least get my iron level up and do it quickly!  It took about 2 weeks after the IV iron transfusion (the transfusions took two weeks) before I was feeling MUCH better.

I missed my last appointment with the hematologist through a misunderstanding.  I am bummed because I am already noticing my hair falling out more again and I feel tried more readily but at least now I know what's wrong. It has taken me THREE months and lots of testing to figure it out but I did!  I have an appointment to go back in two weeks.  I can't wait!  Nothing like being poked and watching what looks like rust drip into your viens and then feeling FABLOUS for a few weeks!  LOL

The moral of this story...

Just because your lab values are "normal" does NOT mean that everything is okay.  If you are not feeling well continue persuing the subject until you have an answer! NO ONE know YOU better than YOU!

For a blog with some really good information on Hashimoto's Thyroiditis (autoimmune thyroid disease) or hypothroidism in general please check out Hypothyroid Mom blog.  It has a wealth of information!

For information on iron deficient anemia please check out The site has a lot of information on symptoms, testing and what you can do to increase iron in your diet.

Monday, March 31, 2014

Vaccines and the California Measles Outbreak

If there are doctors who have taken the time to read the full package
insert on vaccines I have not met them yet. Typically they rely
on the handouts from the CDC.  Photo courtesy of

I don't believe heavily in vaccinations for lots of reasons. For full disclosure I did vaccinate my children until they were about 12 to 18 months old before I started to realized the potential hazards of vaccines.  I don't get my information from celebrities but medical journal articles. 

Rarely are unvaccinated children the cause of an outbreak. Normally the cause is someone traveling out of the US (or entering the US from a foreign country). These are called import cases. In the articles listed below, the fourth paragraph down, states that 99% of the 159 measles cases were import associated. From January 1, 2013 to August 24, 2013, there were no deaths were recorded due to measles.

Even in the most recent outbreak in California less than half of the people that got the measles were unvaccinated children. In the last paragraph the article details ten people who had been out of the country and they are the ones that probably brought the measles back. In the United States measles is not prevalent due to proper sanitation, improved hygiene and good nutrition.  

Here is a post from Facebook from Dr. Bob Sears.  I like him because he provides a fair and honest evaluation concerning the California measles outbreak. 

Orange County Measles Epidemic . . . Not (yet, anyway)!

Wow. Who would have thought that a few simple sentences in my last post would cause such an uproar? If you missed it, check it out below. All it says is “don’t panic. If your child hasn’t had a measles vaccine, you can get one now. If you don’t feel comfortable with it, don’t panic, because there are only seven cases (at the time).” That’s it.
But it’s interesting what people took from it:
Some people seem to believe the post advises people to not get the vaccine, which the post clearly doesn’t say. The post says get the vaccine, or don’t – it’s up to you. I guess what the vaccine militants wanted me to say, instead, is that every single person, without fail, should get the vaccine no matter what.

Some have attacked me for starting a measles outbreak seven years ago in my waiting room, which is false because no one with measles has ever even been inside my office (except for one child about 15 years ago who came down with a live measles infection from the vaccine, which is pretty rare but known to happen); so much for journalistic integrity for whoever wrote that (to be fair, most journalists do have integrity).

Some took my post to say that the MMR vaccine causes autism. WTF? The post doesn’t even include the “A” word.

Oh, and some thought my post said measles is harmless. My post didn’t even comment on the severity of the disease at all. Of course measles is sometimes harmless. It’s a tough disease. It’s no fun at all. The measles chapter in the book makes that very, very clear. My mistake though – I didn’t reiterate that in the post. So, for the record, measles CAN be very serious. It RARELY causes severe complications though. Almost everyone who catches measles here in the U.S. will be fine. You’ll be sick for a week, need to be quarantined, then you’ll be fine. IF your case is typical. BUT, in a small percentage of cases, even in the U.S. where we don’t have Vitamin A deficiency and protein malnutrition, complications can occur. About 1 in 1000 may die from it (studies vary – some say 1 in 3000, some say 3 in 1000). We haven’t had a measles death in the U.S. in over 10 years. But you know what? We will someday. May be this year. May be next. May even be here in the O.C. Every death from a vaccine-preventable disease is tragic. I’ve never said otherwise. So, just to make a few of you pro-vaccine militants happy, there you go. Measles can be bad. In developing countries with malnourished children, it’s even worse.

But for most, it’s a harmless disease. Old pediatric textbooks call measles a harmless and routine disease of childhood. IN DEVELOPED, WELL-NOURISHED COUNTRIES, for most people, that’s true. But not for all.

Finally, some love to blame me for the outbreak. As if people aren’t getting the MMR vaccine because of me. In the measles chapter of the book, AND in my alternative vaccine schedule, the MMR vaccine is very clearly listed at 1 year and 5 years. I very clearly recommend the vaccine in the book.

The post was simple – there’s a small outbreak, don’t panic. Get the vaccine or don’t. Up to you. Perhaps I should have said, “It’s really NOT up to you. It’s your social responsibility to get your children fully vaccinated so you don’t infect others. That way, NO ONE would ever need to have measles.” Keep reading – more on this later.

So, now we have about 21 cases in Orange County. We all knew it wouldn’t stop at seven. In my last post I gave a heads up that we’d see more. I thought maybe a few more, and didn’t think it would jump to 21. But it did. 5 cases are children, all unvaccinated. 5 are healthcare workers exposed to patients. They were vaccinated when younger, but the vaccine had worn off. As for the other 11 cases, I don’t know. Those details weren’t disclosed. But they are adults, according to the public health department notice. The outbreak won’t die out until everyone who’s been exposed either gets infected (which will be a very small few) or doesn’t, because they’ve been immunized or their immune system fights it off. Most outbreaks nationwide are restricted to a small number. The largest outbreaks from last year (58 in New York and 20 in Texas) occurred because the exposures were in large groups of unvaccinated people. Here in the O.C., almost everyone is vaccinated, so we are unlikely to see such a large outbreak. But it WILL extend a bit more. Who knows what the final number will be? But in the absence of a large unvaccinated group, it isn’t likely to spread much more than it has now. IF it hits a particular school or group where many are not vaccinated, it will likely spread through that group.

Finally, a message to those who chose to not get the MMR vaccine. I would still say don’t panic. The chance that your child will be caught up in this small outbreak is still very low. I understand your reasons for not wanting the vaccine. Every parent is required to read the CDC-mandated list of side effects to every vaccine before it is given. And the list of side effects to the MMR vaccine is quite daunting, and would scare any parent. You’ve probably read this list and opted out of the vaccines. The CDC handout tones it down a bit, but the MMR vaccine product insert doesn’t. And that’s what is spelled out in the measles chapter of the book. I simply list the side effects as described in the vaccine product insert. So, if any mandatory vaccine militants are going to be mad at me for that, then what you are really saying is that parents should NOT receive informed consent about this medical treatment. They should NOT be informed of the risks of a vaccine; they should just be reassured that the risks are small, they don’t need to worry their pretty little heads about the details, and just go ahead with the vaccine. If that’s how you feel, then you are justified in being angry with me. For the rest of you who like to follow proper medical procedure and medical ethics, you provide informed consent for vaccinations. Allow the parents to be involved in this decision. Some will decide NOT to vaccinate; this puts their child at a small risk of disease, and it poses a risk of their child spreading the disease to other unvaccinated or too-young-to-be-vaccinated or those-who-got-vaccinated-but-it-didn’t work (I don’t think that was grammatically correct), but parents have that right to make that decision.

If we could guarantee that every single dose of MMR vaccine would be harmless to every child who received it, then we could be justified in making the vaccine mandatory. Since that’s not the case, we must allow parents to decide.

Bottom line: if your child has had one vaccine, then there is a 95% likelihood that he or she is protected. If two doses, it’s about 98 to 99%. So, you’re in good shape. You likely have nothing to worry about. Unfortunately, as we’ve seen in this outbreak, some adults will lose their immunity, and may catch the disease. If you decided to not get the vaccine yet, then you have a decision to make. Read all the pros and cons. Understand the side effects of the vaccine as well as the disease. Consider the importance of public health protection. If you were planning to have your child get the vaccine at some point anyway, but you were waiting until an older age, maybe now’s a good time to consider it. But the outbreak is still small enough where you don’t have to rush into it. If you decide against the vaccine, the disease risk is still acceptably low. Stay tuned.

Often vaccines do not confer a life long immunity to a disease so it gives people a false sense of safety against the disease. This is somewhat prevalent in measles and is definitely seen in whooping cough. (Fourth paragraph down)

Have you read a package insert for the MMR? Here is the package insert from the MMR II made by Merck. On page six it says there have been no animal studies to determine if the vaccines can affect reproductive capacity. At the end of page six is the start if adverse reactions. These include vasculitius, diabetes, anaphalaxis, arthritis, Guillian-Barre syndrome, seizures, encephalophy, and death. There are many more side effects that I did not list (both severe and not so severe).

As the old saying's all fun and games until someone gets hurt.  That is the way I feel about vaccines.  IF you are the unlucky parent of a child injured by a vaccine (yes, it DOES happen) then YOU have to deal with the aftermath!  You cannot sue the doctor or manufacturer of the vaccine for compensation to help pay all the medical expense YOU will now have to deal with.  This is due to legislation passed by Congress called the
National Childhood Vaccine Injury Act (NCVIA) of 1986 (42 U.S.C. §§ 300aa-1 to 300aa-34).  Since 1989 the National Vaccine Injury Compensation (VICP) has awarded 2.7 Billion dollars in damages!  Often vaccine injuries are self reported by doctors so the number of vaccine injuries could be much higher than listed on VAERS.  It is not easy to win a case in the vaccine injury court.  Here are three links to give you an idea of what happens.

I often hear the argument to get my children vaccinated for the greater good. Do you know what? The greater good would not be taking care of my child if they were injured from a vaccination...that would be my job. So, since its my job, then I feel like I should have the decision left to me.  I should be able to choose to risk my child's health by vaccination or take the risk of the miniscule chance they will catch the disease. It is a bit of a gamble either way. With the general lack of prevalence of infectious disease and I home school my children the likelihood of them catching an infectious disease is pretty low.  I think I will continue to not vaccinate.  Sorry greater good.   

Also have you ever thought about the connection between the CDC and pharmaceutical companies? There is a very close tie there. This is part of the reason why the CDC pushes for more vaccines than ever. The bill discussed in the article was not passed due to pressure from the large pharmaceutical lobbyists.
I've put a lot of thought and research into vaccinations. I don't think I should have my parental rights questioned when it comes to medical decisions concerning MY children. That is why I disagree with what Colorado and several other states have done but more on the erosion of parental rights in another blog post. 

Wednesday, March 19, 2014

#freeJustina Pelletier and How the Government Can Steal Your Child

Some of the latest news on the #freeJustina Pelletier case...

The parents went to court on Monday, March 17th, as the judge directed to hear the judges' decision on the placement of Justina.  Once again, Judge Joseph Johnson, added insult to injury by not making any decision.  He said he was going to make a decision by Friday.  Why Friday?  Your guess is as good as mine.  It makes no sense really.  How can the judge keep postponing the decision?  Hasn't the 13 months Justina has been in Massachusetts DCF's custody enough time to make a decision on the family or even the placement of Justina? 

Monday was also the day Justina's situation appeared on Dr. Phil.  I am thankful he gave more national coverage to the plight of Justina!  I included a clip from the show. If you look around a bit on You Tube you can find the full episode if you want to watch. In the full episode you can see the shock of the head of Child Protective Services in Los Angeles.  This case is appalling and there seems to be no end in sight of the wrong doing of Mass. DCF and Judge Johnson!

So why isn't Justina home yet or at least on her way there?  In a very telling radio interview constitutional attorney Mat Staver, of the Liberty Coalition, spills the details of court documents he had obtained.  Apparently Judge Johnson can order a child removed and custody be given to DCF; however, when he issues an order to return Justina DCF can ignore that order!  What you say?  Yes, the Judge wanted to return Justina to her family MONTHS ago but DCF has been ignoring his court order. 

If you are like me then you begin to wonder...  How in the heck can DCF ignore a judge's court order.  It is pretty simple really.  In an article from MassOutrage the group details just how corrupt DCF really has become in the twenty years! According to the article a couple of court case decisions back in 1995 gave DCF almost complete control of the children in its custody.  The only way a judge would interfere is if someone can prove they used an "abuse of discretion."  Normally one would think this is a good idea but judges have turned a blind eye to abuse of children given out BY DCF but if a parent had done the same action DCF would have swooped in and taken the children away.  You can't even sue DCF because they have been granted "qualified immunity."  Basically the ONLY way you could sue DCF is if they violate a "clearly established" constitutional right (which is why you NEVER open your door to a DCF worker!... Fourth Amendment). 

So what are clearly established constitutional rights?  They are rights specifically listed as being protected in your state or federal constitutions such as free speech.  Parental rights are considered "reserved powers."  This means that it is a power not specifically given to the government or by the constitution and belongs to the people under the Ninth Amendment of the Constitution.  ALL powers, including parental rights, which are not mentioned in the Constitution are kept by the people under the Ninth and Tenth Amendments (I did not know that!  Thanks MassOutrage!).  Since parental rights are reserved powers the government has the ability to take your child away whenever it sees fit. Why?  Because the government sees itself as the parent to people unable to take care of themselves (children, disabled and elderly). You birth them, love them, pay for them but the government OWNS them! Don't believe me?  Look it up!  Parens Patriae... In Wikipedia it defines parens patriae as a "public policy power of the state to intervene against an abusive or negligent parent, legal guardian or informal caretaker, and to act as the parent of any child or individual who is in need of protection. For example, some children, incapacitated individuals, and disabled individuals lack parents who are able and willing to render adequate care, thus requiring state intervention." So the government has reserved the right to have control over your children and you are only holding them for the government!  If you make the government mad (for any real or imagined reason) the government can seize control over your child.  You have NO POWER!  If the government takes your child your best hope if to pay for the very best attorney you can afford and fight them, politely but firmly, in court. (I did a lot of summarizing from the article on MassOutrage.  Please take the time to read the article in its entirety.  It really is a rather exceptional piece!)

This is EXACTLY what they have done to the Pelletiers.  They have been fighting alone, then they got help from the media, and the public.  Finally they have been getting help from billionaires, nationally recognized attorneys, national media, legislators, and many many others but DCF still has custody of Justina! DCF does not even have a plan to return her home to reunite her with her family!

Not to say the government doesn't need to step in sometimes for those that cannot defend themselves but the American people need to stand up and say, "NO MORE!."  We NEED a law, maybe even a constitutional law, protecting parents from false allegations by the government. To make the burden of proof, especially in cases were the child is being fought over concerning a difference in medical diagnosis, more difficult for the government to intervene.  We need to change the mind set of guilty until proven innocent back to innocent until proven guilty as our forefathers intended!

Sunday, March 16, 2014

#freejustina Pelletier and Measles

Photo courtesy of
I have continued to follow the case of Justina Pelletier.  I have to say I am appalled by what has been going on!  Tomorrow's court date will help to determine what will happen with Justina.  I pray she will be allowed to go home but I am worried that Massachusetts DCF will continue to fight for custody over her.  Once it was decided that Justina's original doctor from Tufts could resume care then DCF should have released her back into the custody of her parents.  That was the reason DCF and Boston Children's Hospital used to take custody from the parents in the first place.  Being child protective services (which does very little to really protect children) they LOVE to keep their hooks families to control what the parents can/cannot do with their children.  I hope tomorrow goes will for the Pelletier family!  They will be on Dr. Phil tomorrow (check you local listing).  I will be watching and I hope you will be too!

Some items you can do to help #freejustina :

1.  There is a group taking a survey for parents of children with rare and undiagnosed diseases.  If you have a child that fits into that category please take the time to go and fill out the survey.

2. People are working on doing a "Twitter storm."   If you have a Twitter account please participate!  Information can be found here...

It is not one shot but at least two. If you go
college then you get another shot and now
some adults are recommended to get a fourth
vaccination.  Not so sure the vaccination
confers immunity as the CDC says if you
need so many boosters!
Photo courtesy of
On to other news...

I hear a lot of flack occasionally about not vaccinating my children.  With Joseph having some disease that is undiagnosed I am in no hurry to vaccinate the children.  There was recently, a rather offensive opinion piece, published in the The Daily Beast titled Thanks, Anti-Vaxxers. You Just Brought Back Measles in NYC. The article was rather assertive. In 2000, when measles were declaired eradicated,  there were 89 cases.  So the extra 100 cases last year made for an outbreak?  Really?  There are roughly 318 MILLION people in the United States yet only 189 cases of the measles were reported last year. That was 0.0000006% of the population.  That is NOWHERE close to an outbreak to me!

From January 1 to August 24, 2013 the CDC reports some interesting information.  First, of the 159 cases reported to the CDC 157 of the cases were import-associated.  This means that someone went abroad and came to the US with the measles and infected others.  The US itself does not have a high incident of measles but other countries, with poorer nutrition and sanitation, have higher incidents of measles. Second, out of the 159 cases reported there were only 17 people hospitalized for some reason related to the measles.  Only FOUR people out of 17 had something more serious (pneumonia) and NO DEATHS were reported.  This is in stark contrast to the quotes I have been seeing saying about 30% of measles cases have serious complications.  IF ALL of the 17 cases that were hospitalized were done so for serious complications (and I doubt it or the CDC would have reported it) then only 10.7% of the measles cases caused a significant health problem. Not the 30% figure that is so often thrown around.  If, as I think, there were only FOUR serious complications for the measles (I would consider pneumonia serious) then only 2.5% of the measles cases caused a serious complication. Again, no where close to the 30% figure.  I think the CDC and others use that figure as a tactic to get people to vaccinate.  If you are wanting to read a bit more on measles and why there is no dire need to vaccinate then please read the blog post by titled Thanks, Pharma. You created the “anti-vaccine movement”.

I have done my research on vaccines and I have to say I would rather leave my children unvaccinated.  With the health issues they have and the low risk they will be exposed to measles I am not worried.  Even if they got the measles I think they would handle the disease just fine.  Then they would have a permanent immunity to measles versus the false hope they would never get it because they were vaccinated.


Thursday, February 27, 2014

Rare Disease Awareness Day #freejustina

Tomorrow is Rare Disease Awareness Day.  What a great time to revisit the Pelletier case!  I have to admit I am rather at a loss!  The parents have done all they could.  Monday they show up in court thinking they would have their daughter returned to them, a little over a year after she was taken away, but the judge instead ruled Justina would be placed in foster care versus going home to her family (Father, mother and three sisters). Once the news broke about what was going to happen to Justina people immediately began to speak out and call for a vigil at the foster care facility in Merrimac.  When the foster care group home heard the negative press, the protests and all the drama associated with housing Justina they quickly declined.  What do I say about that?  Way to go!  Glad the voice of the people can still intimidate someone!

Photo curtsey of
Massachusetts Representatives Marc Lombardo and Jim Lyons seem to be among the few people in the state that have some common sense! 

“The Pelletier case is a dispute between conflicting medical opinions… the decision on which medical treatment to adopt should rest with the parents, not with DCF. The Department’s heavy-handed, unjustified interference with the rights of these parents is an example of what is wrong with this agency,” said Rep. Jim Lyons (R-Andover).

WOW!!! Congratulations sir! You are brilliant! These two legislators along with 12 others are looking to introduce a bill into the House to ask for the release of Justina to her parents.

So what can YOU do to help? Most of it is pretty simple yet VERY effective!

1. You can participate in the Thunderclap event set up for March 16th at 9am. What is thunderclap you ask?
I had never heard of it either but Thunderclap is a platform that allows you create a message, then other users can sign up for it with their facebook, twitter, and instagram accounts. On a specific day and time, thunderclap will then use everyone's accounts (don't worry it doesn't save your passwords and stuff) to post that same message. It ONLY posts it ONE time, but when 40,000 people sign up with twitter, facebook, and instagram, then that same message is sent out 120,000 times. Social media EXPLODES. I love the concept and I signed up! Here is the link:

2. You can go to each Massachusetts Representatives Facebook page and comment either thanking them for supporting the resolution to free Justina or politely asking that they do and hashtag ‪#‎freejustina‬. There are hardly any comments on these FB pages right now. 

These following people deserve a round of applause for having some common sense! They are currently support the resolution to #freejustina.

Mr. Marc Lombardo of Billerica

Mr. Jim Lyons of Andover

Mr. Matt Beaton of Shrewsbury

Ms. Leah Cole of Peabody

Mr. Geoff Deihl of Whitman

Mr. Angelo D'Emilia of Bridgewater

Mr. Ryan Fattman of Webster

Mr. Paul Frost of Auburn

Ms. Colleen Garry of Dracut

Mr. Jim Miceli of Wilmington

Mr. Frank Morgan of Lawrence

Ms. Shaunna O'Connell of Taunton

You can contact the other members of the House either on Facebook or at the following website to ask them to join in supporting the resolution:

3. You can contact the following officials and let them know you are concerned about the Justina Pelletier case:

Martha Coakley
Attorney General of Massachusetts(candidate for Governor)
One Ashburton Place
Boston, MA 02108-1518
617-727-4765 (TTY)

Joseph F. Johnson
Essex County Juvenile Court
Lynn Session
139 Central Avenue
Lynn, MA 01901
(781) 586-0415

Dannel P. Malloy
Governor of Connecticut
State Capitol
210 Capital Avenue
Hartford, CT 06106
800-406-1527 (toll-free)
860-524-7397 (TDD)
860-524-7395 (fax)

Deval Patrick
Governor of Massachusetts
Massachusetts State House
Office of the Governor, Room 105
Boston, MA 02133
888-870-7770 (toll free in state)
617-727-3666 (TTY)
617.727.9725 (fax)

Olga Roach
Acting Commissioner
Mass. Department of Children and Families
600 Washington Street
Boston MA 02111

Even after we have Justina home lets all remember that this is more than just a fight for Justina.  This is a fight for parental rights, for the rights of mental health patients, protection to children and families with rare and undiagnosed diseases. It is SO easy for a medical professional to accuse parents of medical child abuse when they have a child that has a rare or undiagnosed disease.  Tomorrow is Rare Disease Day!  What a great time to do your part in helping Justina, who suffers from the rare disease of mitochondrial dysfunction, along with helping to protect the rights of so many other people!

Speak up, Speak out!  Go and do your part!  Please dedicate 15 minutes out of your day helping such a great cause!

Sunday, February 23, 2014

Undiagnosed: Medical Refugees - The Movie

Photo courtesy of
Addendum:  Dr. Katina Moritz will be doing some speaking engagements concerning this documentary.  She will be coming to the Phoenix area.  If I receive any information I will pass it along!
Across my Facebook page came something I found most interesting.  I LOVE my Facebook friends!  I have a very eclectic and interesting group of friends on Facebook and I never know what is going to see on my Facebook page.

Yesterday I say a post about a new movie called Undiagnosed: Medical Refugees.  This movie moved me like no other!  Having a child that has stumped multiple medical specialists as to what is wrong with him I can relate!  Going from medical specialist to medical specialist can get you in trouble with child protective services (like in the Justina Pelletier case) but if you believe something is wrong you have to keep searching for answers!  The ladies who are working on the film have done so, to this point, completely out of pocket.  They are about 80% complete with the movie and are seeking funds to help with the final production of their movie.  Please donate!  It would be a tragedy if this film is never produced!

Please pass this along..Twitter, Facebook, Blog and other forms of social media.... Let's get this movie funded!

A bit about the film from Vimeo...

UNDIAGNOSED - MEDICAL REFUGEES Trailer and Plea from Undiagnosed Films on Vimeo.

There is a hidden epidemic - millions of people living with perplexing illnesses that elude definition and treatment. Undiagnosed: Medical Refugees is a medical documentary about what it is like to exist in a constant state of unknown, struggling with undiagnosed illnesses and rare diseases, and existing as medical refugees in a modern health care system. The film aspires to bring objectivity to this controversial and timely subject by interviewing doctors, medical administrators, and people, both children and adults, who have the misfortune of suffering without a diagnosis. Research and professional opinions combine with gripping stories into an incredible narrative that showcases the strength of the human spirit and the need for change in our medical system.