As I sit in my kitchen listening to the loud swishing sound of the water flowing in my dishwasher I think about the people I chat with on Facebook. They are from all around the country, leading their life as best they can but we all have one thing in common...we have a child with a disability.
I know I and many other women (and a few men) chat about the disabilities our child is facing. We talk about the struggle to find a diagnosis when they start exhibiting behavior that is not normal for them. As we turn from doctor to doctor looking for answers we tend to either find more questions or no answer at all. Some of these women I know have been accused of Munchausen syndrome by proxy by local school districts because they insist there is a problem with their child. They want to find the root of the problem but all they are getting are doctors who will only treat the symptoms.
It makes me sad that so many people are turning not to a doctor but to other parents in hope of finding an answer because the doctors just don't know what to do. This is the case for my little Joseph. The specialists are at a loss for what is wrong with him but they treat him symptomatically and pat me on my head and send me on my way. With all we have at our disposal in modern medicine we should be able to make a diagnosis.
I am the mom of surviving quadruplets. My blog covers the birth of my children, their special needs, therapy, homeschooling and what it's like to be the mom to these special kids!
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