Sunday, June 30, 2013
After working from home basically full-time for the last three weeks I am thrilled to be going back to work on Monday. It has been tough to deal with work and stress from the last three weeks doing multiple job. I am thankful John is here to help!
Monday (June 24) was a stressful day. I got up and COMPLETELY forgot the medical lady from ACHSS (I think that's right) was coming. I got up and immediately started to make the children breakfast. I was finished making breakfast and ready to feed the children when she arrived. I feed them some while she asked me questions. Nothing like having a guest over right after you got out of bed and un-showered sitting in your pajamas. To do the medical interview for all three children, along with making copies of the medical information I had, took four hours. It was long! I was told I would hear back in two weeks. I hope so! I have not been able to get any therapy services set up for the children since moving here nine months ago. It is ridiculous! There really aren't any therapists on my private insurance. I HAVE to be signed up through the DDD and DDD will not help me unless ACHSS is funding the services. I hope we can get this all straightened out!
Friday (June 28) I spent from noon to five calling all sorts of people trying to get appointments set up. I will
be able to hand this off to John on Monday. I had to call my insurance, United Healthcare of Arizona, for state employees, and I have to say I am NOT impressed. I had to call FOUR times to try and find therapist. Therapists who are both pediatric AND EACH of the specialties (OT, SP, PT and Feeding). I FINALLY, on the FOURTH phone call, found a center that offers ALL the therapy services AND is pediatric. I called them and they are booked. The woman I spoke with said the best way to get in and get services is to have services through the DDD. I laughed! I said I had been trying to get services for the last nine months and I was the closest I had been yet.
My first call on Friday was to Dr. Salevitz. He is a pediatric eye doctor. I have to get all the children to an eye doctor. I want to see if Joseph can do an eye test now he can talk. Plus we are not sure if he is color blind or at least have the color portion of his vision impacted. Next I called SARRC. They only told me of other people to call and see if I could get help. Then I called Dr. Hancke's office. I have to set an appointment with the endocrinologist to discuss Joseph's stature and pay my bill with him. After making calls to United Healthcare I finally found a therapy office, Bright Horizon Therapy, but I have NO idea when we can get in with them. Got to call in a week and follow up (that is how long they asked me to wait). Next I called Dr. Jay Cooks to see if I can get Joseph in for a follow up with a neurologist. I will see about working Margaret in if I like the doctor and finally James. I would like to have an MRI of James to see if he suffered any brain damage (hope not but then again I never thought Margaret would have had brain damage either!). Finally I called Dr. Robin Laks office and see about taking all the children there too. She is a pediatrician in the area that deals with medically complex children. I was told she is very good and I am excited to get the children in to see her.
So that is how I spent five hours of my Friday. I did not even call anywhere near all the people and places I wanted to call but it is a good start and John can take it from here!
Thursday, June 20, 2013
|House bursting at the seams...LOL|
At the moment I am wound up about as tight as I can go. I got up this morning with an overwhelming urge to cry. I am not entirely sure why...what brought that on this morning in particular. I think it is because I am tired, mentally and physically. That I need a break from people, from work, from my life in general.
Since my last post I found out I am diabetic. It is had to admit but its true. All the women on my mother's side of the family are/were diabetic. I knew eight or more years ago I had problems with too much insulin production and started to take metformin. Now here I am, at 40, diabetic. It is a bit depressing. I have been trying to manage my diet and stay away from sugar and carbs but it's been hard. Ironically is it a bit easier when I am at home because I know I can make food and have a bit more control over what I am eating. When I work I often have to grab fast food because I don't have time or energy to make things. I really have got to work on that! I know I am slowly killing myself but it is hard to change (as she sits drinking sweet tea [hey, at least I used the equivalent of Baking Splenda]).
After having Bailey, who is no longer working for me, and her grandfather live here we have added two more early twenty-somethings to the picture. That makes five adults and three children (the little kids) in the house. I have a BUSY house...practically bursting at the seams! After taking care of the little children today and not getting near enough actual work accomplished I am now sitting in my room writing this blog post and then I am going to work on...well, work. Don't forget also that John will be coming and adding himself to the menagerie at the end of the month. It is interesting that with all these people in the house I still feel alone and stressed. The older kids (twenty-somethings) are nice but have their own agenda. Bailey's friends, in particular, are quite nice and rather interesting to talk to when they have time. It's weird how being in a house full of people can still leave you feeling lonely. Bill goes to work, the older kids stay in their room or leave and I am left to hang out with the little children who slowly drive me nuts during the day. I don't think they would drive me as batty if I knew I did not have work (real work, the kind that pays the bills) to complete.
Speaking of going nuts...
A friend posted this on Facebook today. It came just in time as the children were driving me to my breaking point...
A Hundred Tears:
A hundred times I told him
a hundred times and more,
"Don't hit the dog, don't run away
don't throw that on the floor!"
All morning he was tireless
he never stopped to think
he broke my lamp, he spilled his milk
dumped the kitten in the sink.
He ran around the house all day
without a stitch of clothes
he flapped his hands and sang and cried
and fell and bumped his nose.
At dinner came the moment
when I'd simply had enough
he refused to eat his dinner
and that's when I got tough.
I sent him off to bed at once
despite his tearful pleas . . .
I let him cry himself to sleep
it brought me to my knees.
When silence fell upon his room
I slowly crept inside,
and gazing on my little son
I lost my foolish pride.
A hundred tears I wept right then
a hundred tears and more
for this little child who spilled his milk
on my nice bright shiny floor.
Who am I to scold my son
for things he cannot know?
he looks to me for patience
to help him learn and grow.
A hundred prayers I said that night
a hundred prayers and more
Help me Father, teach my child
this child that I adore.
And as I left his room that night
I kissed his tears away
and promised that tomorrow
would be a better day.
~By Susan Meyer
Nothing like a well timed reminder that I need to be patient with my children and others. Tomorrow is another day...