Kid Craft Ideas for Thanksgiving

http://happyhomefairy.com/2011/11/05/turkey-lunch-sack/

Thanksgiving is coming and I have been thinking about craft ideas to do with the children.  Having children with multiple difficulties (ADHD, intellectual delay, sensory processing problems, and autism) craft time can be interesting!  Here was a picture I came across on the internet and I thought the children and I could manage this craft activity.  I will trace out the shapes and then let them practice cutting.  Then with some help I think we can get all the pieces glued onto the bag without too much mess!  LOL

http://www.messforless.net/2011/11/paper-roll-turkey.html

I have been saving up toilet paper rolls for awhile now and I have been waiting for a good craft idea.  I found this idea on Pinterest.  Toilet paper roll turkeys.  Again, with a little work in advance I think I could have a fun craft project for all the children and not frustrate anyone.  Often James is too impatient for crafts.  Margaret likes the idea of crafts but can't pay attention or stay still long enough to complete something. Joseph enjoys doing crafts but he is really slow.  Being intellectually delayed he will get it and I don't want to rush him so I think you can see why we have problems with craft time...  everyone operates at a VERY different pace!

Here is the last idea I found on Pinterest.  Sorry but there is only an image and no instructions.  I think by the image we get the idea of what to do.  Another variation and something I have been wanting to try is salt dough.  By clicking here you will be taken to a recipe for salt dough.  I know the recipe says its for ornaments but I think it would work well taking a handprint.  You can also google salt dough recipes and find lots of options!  I think this craft could come out SO cute!  It would be me doing most of the work so I don't think this is really a craft for the kids but it looks fun and they would love helping to make the dough!






Hopefully we will get around to making at least one or two of these crafts.  If we do I will post pictures on how it turned out!   If any one tries one of the crafts please send pictures!  I would love to see how they turn out!

I've Been Slacking!

I freely admit it that I have been slacking lately with keeping up with the blog.  In my defense I have not been feeling very well.  For the last four months I have not felt well and things have been getting worse.  I have been complaining for the last year that my hair has been falling out and it is so bad not I can see my scalp through my bangs.  I have been battling chronic anemia since the birth of the babies but I have no idea why.  I take iron pills until I am good and a few months after I stopped I would be anemic again.  So I went to my primary doctor and discussed with her my issues.  She was not helpful because she told me to see a series of specialists. The dermatologist said it would not be something she could help me with.  I have gone to a GI doctor.  After being invaded in all sorts of ways that would make an alien abduction story sound tame the GI doctor determined I do not have issues with gluten, lactose, or have an ulcer.  I thought I had an ulcer with all the symptoms I have including the chronic anemia.  I was wrong.  So what's my problem...why do I have the chronic anemia?  So far, who knows?  I also do not know what to think about my hair.  So I have have several other appointments lined up.  One with a hematologist and an endocrinologist.  Hope to find an answer with someone.

Thanksgiving Day 2013

As for the children.  Well, they are far more interesting to talk about and I would guess that is why most people read the blog!  Near Thanksgiving I had all the children lose at least one tooth. It was VERY cute.  I love the picture I took of all of them smiling.  Joseph has both of him front teeth missing.  He had those pulled out when he was at the dentist in Las Vegas.  Then Margaret has lost her left, top front tooth.  James lost his top, left tooth that day!  Very cute!  Lots of smiles and not as much teeth!  Thanksgiving was a nice time.  We had moved into our new house near central Phoenix. I had Maddi, Dimitri and Jerrin all here at that time.  It really was a nice Thanksgiving!

I will have to cover the children's 6th birthday some other time. 

Christmas was a stressful time.  We were running VERY low on money.  I was back logged in bills and struggling to support everyone one in the house.  My oldest son was helping out too.  He had taken a part-time job at FedEx and was helping out with food and bills in the house.  Jerrin soon left after Christmas. He went back home to the 16 year old he was seeing (he is 21).  I cannot help but say what is in my heart...they do not belong together.  Because of that I did not keep my mouth closed and told Jerrin what I thought.  In doing so cost my relationship with him.  If that is how things need to be right now then that is the case.  It breaks my heart but I understand he is following his heart.  I just cannot support in that endeavor at the moment.

New Years was quiet.  John and I enjoyed our 14th wedding anniversary.  It was nice to have a little time alone.  By the end of January Maddi and Dimitri had moved out.  I hated to see them go.  I really did.  John and Dimitri were seeming to argue or have some sort of issue most every day.  I honest think John was the cause of a lot of the issues.  I don't think he meant to be but subconsciously I think he wanted to have the house to himself.  After Maddi and Dimitri left John and I were coasting along but things were tense.

We were finally able to find someone to do rehab.services for the Margaret and Joseph.  We also found someone to give us some respite.  So in the 18 months I have been here I have only been successful in getting rehab. services and some respite set up along with a little intermittent physical therapy services.  My children need so many other therapy services and I just cannot find service providers here.  Just getting into some doctors too can be a chore.  I have been trusting John to handle those duties and I have been trying not to interfere but it is getting harder.  I know I need to get the children in to see doctors and specialists and the time is running out for me to have "good" insurance and the appointments are SO far out into the future!

My time is running out because I think the plan is for us to return to Las Vegas.  John and I both like it there more.  I can get the therapy services I need for the children easier.  The therapy services, especially at this age, is significantly more important than them seeing doctors.  I know Joseph is a medical mystery.  We are still at a lost.  In Joseph's recent deep muscle biopsy test and lumbar puncture we still did not find answers. Joseph's test from the lumbar puncture did not show cerebral folate deficiency.  That was good news.  In the muscle biopsy test on the other hand did not show me what I wanted.  The purpose of the muscle biopsy was to test for some of the more "common" forms of mitochondrial disease.  Oh course, Joseph tested negative for all of those.  That does not mean there was nothing found that was unusual in his biopsy!  Joseph showed an increase in positivity for acid phosphatase and he showed abnormal storage of lipids (fats) in his muscle tissue.  Not enough for the pathologist to be able to diagnose a specific disease but enough for it to abnormal.  In the end the pathologist said he could not exclude mitochondrial disease (because there are other forms that cannot be tested but are determined by ruling out other diseases) but said Joseph should be examined for an "unspecific" (the pathologist's word and it means he could not point to any one disease because Joseph's symptoms were not severe enough) metabolic disease and genetic testing.  Ironically, I have done the genetic testing.  Nothing was found there.  That does not mean I would not revisit the genetic testing again.  Tests do change and improve.  Metabolic disease on the other hand is not something we have thoroughly investigated.  Joseph has had abnormal blood work that points to possible metabolic disease but it has never been to the level that a doctor could point to some number and say....hum, looks like we have a problem with so-and-so disease.

I cannot state how frustrating it is to know something is wrong with your child.  You fight years and years to get specialist to see your child as something more than just a preemie that is having problems.  Once I finally got to Phoenix...that happened.  I have specialists here that agree with me. Something is wrong with Joseph.  As to what that is, it even has the specialists here stumped.  All I want is to know what is wrong and if there is anything I can do to help Joseph reach his maximum potential.

Sigh, okay, enough venting about Joseph and his team of doctors.

John and I had a really nice Valentine's Day.  We got to go out on a real date and have a nice time.  I was worried that things would not go well for us since I knew there were relationship issues we had to discuss but we had such a nice time.   We did not do the things we wanted to on Valentine's Day because the relationship stuff turned out to be a HUGE topic and pretty productive discussion overall.  Currently John and I feel closer to each other than we have in years.  I am happy right now and so is he. I wasn't sure if we could have happiness like that again but it seems like we can.  I think it has been helpful to have all the twenty-somethings I had in my house gone. This has allowed John and I to be more ourselves.  To have our time alone in the evening and the space to fight (and/or make up...LOL) as we wish is rather priceless.

Okay, now that I am caught up I will work on keeping the blog more up to date.  Having a desktop really motivates me to write!

Random Thoughts and the Powerball

Photo Credit: Georgia.gov

I have been trying to get a post up but there always seems to be a problem of some sort. I have good intentions but it is just not happening so I am going to give up and start writing the posts during my break and lunch at work. What else am I going to do?

Thanksgiving was nice. I spent about $300 in groceries and was able to fill the refrigerator and pantry with food. I like when that happens! For Thanksgiving day I cooked turkey, sweet potato casserole and green bean casserole. Bailey and her grandfather were there too. Bill stayed busy Thanksgiving day decorating the house with Christmas lights and putting up the tree. Bailey was my assistant and she helped me cook while I was showing her what I was doing. The next day I deboned the turkey and made two large pans of stuffing long with turkey and dumplings. The turkey and dumplings came out SUPER good! YUM!!! The next day I made some pasties (I think I spelled that right…LOL). It is basically a pot pie that you can hold in your hand or maybe a savory turnover. It is pie crust that has been cut and sealed. The filling was ground beef, carrots, celery and potato. It is yummy! That night, with Bailey’s help, I made enchilada casserole. I left the black beans out (because I forgot :(  ) but it was still VERY yummy and Margaret stuffed her face. That girls LOVES Mexican food!

Photo Credit: Fanpop.com

At work an email went out for people to adopt a child for Christmas (Angel Tree). I could have signed us up but instead I picked out a child to adopt for Christmas. As poor as we are, lacking furniture, and a lot of other things I am thankful we have made it to Arizona and I have a job. The little girl is three and her wish was to have Hello Kitty – anything. At the moment Margaret is SO into Hello Kitty that this Christmas wish just stuck out to me. I had already seen a lot of things that were Hello Kitty at Target for a dollar. I had picked Margaret up a few of the things. So I went back before everything was gone and got some more for our Angel. I will also pick up a pillow or throw. 

I have to buy the children stuff for Christmas. It is so hard because there really is no furniture in the house but on the other hand the children’s birthday (Dec. 13th) AND Christmas are coming. John has only come out once to see the children so far. He asked me if I was going to bring them up to Vegas for December and I said I could not. Not only is my car not near as new as his, it is a gas guzzler and I am having brake issues (and who knows what other mechanical problems…sigh) that I cannot come. I told him the money it would cost would leave me nothing to spend for their birthday or Christmas. I had already told him I have Bailey and her grandfather live with me to economize money (plus I like the company…lol). I asked him if he had a roommate in his place since it is two bedrooms and the children are no longer there to use the room. He said no! This is after he complained to me about not having enough money. I just do not understand. He said he wanted to keep the room open when he gets the kids they will have a place to stay. Then we argued about him keeping the children on his insurance. I was saying it would be cheaper for him to let me cover them since he is fully covered for medical by his work. He wanted to keep the insurance so IF he had to take the children to the doctor while he had them then he would not have a co-pay. Really? This makes no sense either. Plus the kids would be triple insured. My insurance from would be primary, his insurance would be secondary (which really only works in the Vegas area) and AZ Medicaid would be last. Since his insurance will not want to cover anything then the Medicaid, most likely, would not pick up the rest.

John also complained to me about what I have said about him in the blog. I told him I try to be honest. In fairness I thought I had mentioned, but apparently never finished the post, about me moving. John did help move us out of the hotel and into the house. I appreciated the help. I really did. The problem is that it is a little help he gave when there is SO much he is doing to either not help or drive me nuts. He said he never talks bad about me in public. True, but he had plenty of bad things to say to me to our friends and family privately. I do bash him sometimes on here but I told him this is where I vent things when I am angry. He said I should talk to my friends. What friends? Krissi, my best friend in California, has different hours than I do. We used to talk at night but now that I get up at 4am I have to be asleep by 10pm (hopefully!). So we do not really get to talk much. My mother, who I like talking to and keeps me up on family gossip, is also often busy with my nephew. Jennifer, a good friend in Florida, is often busy too. That is basically all the friends I have to talk to. It is weird because I have Bailey and her grandfather living with me and I enjoy the company but on the other hand I do not want to tell them more than they read in the blog. I do not want to over burden ANYONE with all the crap I have going on in my life, the things I am unhappy about, and what I want to change/do in the future. It is hard to hold most everything in and not have anyone to tell my problems to (even if it just to listen).

Bailey is starting to go nuts concerning the children. I think she is too harsh with them (James in particular) but she thinks I am too lax. Then when I come home kids go nuts because I am there and the rules change. I agree with her but we need to find some sort of medium. With the hiring of Alexa, a high school student, on Monday, Wednesday and Friday (from 3pm to 6pm) I am hoping it will give Bailey a break and she might be able to show Bailey and I some other ways to try and get the children to comply with what we are wanting out of them. I am willing to try. It is hard to leave the children. It hurt me the other day when, after the long Thanksgiving weekend, Bailey tells me that tomorrow will be hell. I asked her why and she said because you will be gone. I understand her point of view but shouldn't you wake up every day with a positive attitude? You could make that a self-fulfilling prophecy by thinking that way. It hurt going to work on Monday knowing that was how she felt about James and the day in general. It is hard to leave my children. I am still trying to adjust. I am already having to take the day off from work on December 4th to meet with the DDD to see if the children qualify for services in Arizona. I am hoping they will be helpful and qualify all the children for services. If they do I might be able to get Bailey a break.

Christmas and the children’s birthday is coming. I am posting the Christmas/Birthday wishes online. Maybe the children will get something from Santa Claus…lol

James:

The boy LOVES books. He needs books on the second and third grade level. He also could use some math help of some sort. Math is hard for him to understand unless I have beads or something for him to count. A chalkboard would be awesome. Dry erase would be good too. Mom would like the chalk to keep from making a mess.

Joseph:

Joseph would do well with anything that can help him with Braille skills. He is not fully blind but I want him to learn Braille so if something happened he would already know it. He loves anything music (Bailey might hate me for this one). Drums of some sort would be nice (keep in mind ALL the children would want to play them so they would have to be durable). Joseph loves music and lights. Any pre-school learning materials would be nice too.

Margaret:

She is in DIRE need of clothes. She has out grown everything. She is a 3T to 4T in pants and a 4T shirt. She could also use some more shoes. She wears a size 10. Margaret LOVES Hello Kitty right now so ANYTHING Hello Kitty would be great. I also want to get her a twin matters. Just a mattress would be ok and I could sit it in the floor.

Mom:

I need another ROKU for the children. It allows me to stream TV without the commercials. The regular TV is teaching the children a lot of bad habits and Margaret is starting to sounds like an infomercial. I would LOVE to have a gift card to Old Navy or Romans. I NEED work clothes and Old Navy and Romans have clothes that fit and would look nice for work. Mom also BADLY needs an elliptical to work out at home.  Maybe I can work off some of my stress!  Anyone have a used one taking up space?  :)

So that us our Christmas wish list. Wednesday is the PowerBall lottery. I went in with the office pool. The jackpot is estimated to be $500 million dollars. I would LOVE it if I could win…lol. I HIGHLY doubt it but I can dream…

I Promise I Am Trying...

I am trying to get on here for the last few days but I have been too tired.  We all worked like a dog over the weekend and now I am putting 11 and 12 hour days at work so I can have Thanksgiving off and Friday too. We were able to get a washer and dryer up and running.  That was SO much better!!!   We ran at least 12 loads getting all the stinky stuff washed. Wow!

I will be back on Thanksgiving or the day after and update.    :)

Yard Sale!

So tomorrow I will drag out as much as I can out of my house and try to sell everything I can part with.  I cannot afford to move it to Arizona and I am not even certain I will be able to afford to move it to a storage room here.  Since I am still having problems with my right hand from the carpal tunnel surgery it is difficult to do a lot of lifting or much of anything else that involves a lot of use of my hand.  The scar from the surgery still looks bad, is red and inflamed and there is a lot of scar tissue under the scar making the incision painful.  I will do the best I can though tomorrow.  I have a TON of kids clothes I can sell plus a lot of household miscellaneous furniture.  I am hoping to raise at least $100.  That would be great! 

On the positive front I did get a call from UCLA and get a UCLA patient number for Joseph.  I was told the doctor will review Joseph's medical records and decide if he is going to take his case or not.  The doctor's office has until September 7th to get back with me and set an appointment.  Otherwise they will be hearing from me EVERYDAY until they get back with me.  I need to get this muscle biopsy done BEFORE we move. 

I still have no idea HOW I am going to make the move and hold over in Arizona until I can start my job AND get a paycheck.  I am trying hard not to panic over it.  I spoke to my father about my financial concerns today and mentioned that I was facing a $400 electrical bill and I had NO idea how to pay it.  I also need to move and I was not sure where that money was going to come from and I have little to no food in the house and not a lot of gas in the car.  Then I told him I was told by the doctor who did my hand surgery that he wanted me to go to physical therapy twice a week to help increase the strength in my hand, help with the scar pain, stretching the skin, and try to break up the scar tissue BUT I could not afford it since it would cost me a $20 co-pay each time I went and there is NO way I can justify spending $120 a month on the therapy when I need to spend a $20 co-pay to see my family doctor so I can get a refill of an important maintenance medication for me (which will cost $10 to get filled).  At the end of the conversation my sister called so I was told he had to talk to her but he said, "Yep. you have a lot of logistics to figure out for your move."  So I take this as he is not going to help financially. Not to mention my birthday is on the 4th and there was no mention of giving me money for my birthday (hoping that will still happen).  In the meantime I NEED this yard sale to have money to live.  I have $40 to my name right now that I can spend.  Other than that there is NO more money until September 10th.  I have half a roll of toilet paper in my house, not a lot of food and not much in the way of prospects.  I was luck enough to sell Joseph's crib today so I was able to order pizza when James asked for it today.  He never asks for things like that so it was nice when I could say OK and place an order with Papa Johns. 

On the other hand I have felt horrible when Margaret has been asking me for Hello Kitty stuff.  I know she, somehow, got a Hello Kitty doll.  She LOVES it!  So I thought I would look for some bedding stuff for her because I would like to upgrade her to a twin bed.  She saw me internet "window" shopping and asked when I was going to get her Kitty.  You have NO idea how this tore me up because, being autistic, she does not directly ask for things very often and when she does I try really hard to get it for her. 

The other day I was in Target and I saw a Hello Kitty twin comforter for $35.  It was adorable!  I wanted it SO bad for her but I knew I did not have the money.  I COMPLETELY understand why some people steal when it comes to giving things to their children.  To have your child look at you wanting something so desperately and knowing you cannot get it for them.  Yet the item in question is close at hand in the local store.  It is just a matter of taking it.  I understand the desire, I really do, but it is poor impulse control to steal and take it.  I left the store misty eyed knowing the comforter she wanted was so close but SO far out of my reach.  I am hoping I will be able to get it for her birthday in December.   Some days are SO hard at the moment.  I just have to remember that I can, no I HAVE, to make it until the end of November.  By Thanksgiving I truly will have something to be grateful for since I will have a job and be earning money.