All the medical work I have been trying to accomplish for Joseph is not at a stand still.  I am not sure what the geneticist is doing.  She has not gotten back with me.  I think we are waiting to get approval to do a fresh muscle biopsy.  Everything else medical is in limbo.
I am now working on getting the short records for the children and get medical exemptions for them.  I would imagine this will take about a week to accomplish.  Then the school district wants to send over the the children's teacher to see the home environment.  So I will have to clean things up here but of course I am in the middle of making a mess because I am pulling all the tubs from the garage.  Slowly I have been going through them and trying to be ruthless about getting rid of clothes.  My hope is to consign the clothes in a sale in a couple of weeks.  It would be great to get rid of the extra stuff that I am not using.
 
 
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